Rett Girls: It's not all Giving.

 There's something I've noticed about Rett girls, not just my own: Their presence can make the best difference in someone's life.

Nothing else in this world so peaceful.

 There's a lot of yourself you must give, juggling doctors, nurses, other specialists, therapy, and still making time to treat them like the wonderful people they are, as well as siblings.

 It's not even close to being an all-give situation. These girls, just being themselves, teach us so much about life. Campbell is the happiest, and in some ways, easiest child I've known. If she gets her basic needs met she is happy. Sometimes she has painful gas or other issues she can't tell me about exactly, but for the hand she was dealt in this world, she is happy and content. She may want more, but doesn't make a fuss about it. She's good company, and just a smile from her can change the course of a day.

 It's not all giving: You get so much back in return without always realizing.

More infectious than ebola.

 I'm getting close to a solid two-month, stabbing headache. Any time I tell someone it feels better, my optic nerves decide to have knife fights, and they both constantly and epicly LOSE.
  The only time my head has hurt this bad was when I was in the hospital with a nitrous patch. My blood pressure has been too high for close to 15 years now, and lowering it HURTS. This was confirmed by my doctor - with all the extra meds I got, the ones for the blood pressure are working perfectly, FIRST TIME.That's a huge relief for me.

  I mention the headache for a reason. I was feeling it hard last night, eyes watering and all I wanted to do was lay down. I couldn't until I filled Cam's feeding machine at 10. I hung my head down and closed my eyes. Cambell, oh so gently, grabbed my finger and pulled my arm so that it was around her, and when in place, started stroking my forearm as if to reassure me. I opened my eyes and looked at her and she gave me the biggest smile and laugh. Then she farted and we both laughed.

  Most people won't appreciate what a miracle such intentional hand motions are for a Rett girl, but I think most will appreciate what a miracle she is as a human being.